it has been a while since i posted, but things here have been crazy. keith got a cold soon after being home from hospital, but has survived it without going back to UNC to stay. I have battled what we think is Vertigo for about 6 days now. Going back to ENT doc Thursday for some balancing tests to make sure it is nothing to worry about.
Ben and Bella are doing well, few minor issues, ben had a small asthmatic episode that kept him out of school for a day, but has bounced back without an ER visit, but did have to get steroids again at doc.
Bella is talking up a storm. No idea what she says most of the time, but she sure does.
We have found out during the last few months how wonderful our church family and how wonderful our friends really are. They have all come together and done things that I didn't think were possible. Our family has also been very supportive.
Keith was able to go out trick or treating for a bit on halloween! Getting out of the house certainly picked up his mood. His blood pressure has been really low but has seemed to finally be getting back to normal.
Today we went to the Cary Spine Center to get a second (or should I say, third?) opinion on his back pain. After reviewing his chart, MRI's, X-rays, bone scans, they did an exam, repeated his x-rays and found 2 NEW fractures in his back. This makes a total of 4. They are going to order a new MRI and then talk it over. There is a procedure that can be done that is a minor surgery and basically it injects cement into the damaged discs to for lack of a better word, lift them up, and it is supposed to take the pain away. I asked the doc what the recovery time was, he said, "cement dries in 24 minutes". WOW. He said he has had peeps come in riding in wheelchairs, and walking out when he was done. This is the only positive news we have heard about his back. Unfortunately, they have to be new fractures, it doesn't work on old ones, but old ones, once they are healed, do not cause pain. So it's a good thing we went. These have happened since March, so i guess they are considered new still (i hope!) Really, cancer, rear up your ugly head again, we will just beat it back down. Every. Single. Time.
Back to regular oncologist tomorrow. Will discuss all this in more detail with him
On a lighter note, the Multiple Mylemoa Reserach Foundation is having their 5k run in Washington DC this Sunday. We have some wonderful and cool friends heading up a team and are running in keith's honor. We are planning to go if doc says keith can handle that much riding.
Thanks to all of you for support and love and prayers. Our journey is no where near finished, but hopefully we have climbed the mountain and it will be a smooth sailing from now on out, so DON'T FORGET ABOUT US! The crisis is over (hopefully!) but we still need all the love and support and prayers we can get. We won't know for sure if he is in remission until after Dec. 16 when he will be re-staged.
Also, if there is anyone out there who doesn't have AFLAC or some sort of supplemental cancer insurance or if you think it is a crock, call me. I can change your mind. It can happen to ANYONE.
Also, a friend of ours has a new nanny. This nanny's sister was just diagnosed at 23 years of age, with some type of acute leukemia. she was airlifted to UNC where she is undergoing treatment (she isn't even fully concious). Please keep her in your prayers. Her name is Janessa Batchlor (not sure of spelling, but story is on my FB page) She is very very sick and her family lives out of state. She is a student in Wilmington.
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